Wednesday, March 1, 2017

Wednesday night

Lots of ups and downs today-but tonight ended on an "up" so it was a good way to finish the day.  The last couple of days Hannah has needed some I.V. medicine to balance her electrolytes but the stuff gives her terrible headaches and makes her nauseated so that has been a big bummer.  She tried for a long time to say, "I feel Barfy" and we couldn't get it, so she got upset.  If her speaking frustrations weren't so sad, the whole scenario of all of us guessing what she could be saying would be quite entertaining.  Most of the time we are way off and she looks at us like we are idiots.  Tonight I heard Bob ask, "Does it have something to do with a dinosaur?" ha ha ha (I think he was kidding, but that's basically how our guessing  goes).  It seems if she can calm down, then a lot of times what she's trying to say will just pop out.
One of Hannah's good friends has a sister who is studying speech pathology.  She told us that sometimes when people have a hard time speaking, they can actually sing what they want to say-so  tonight we tried it with her.  She ended up laughing hysterically because her voice sounded so bad.  I think the ventilator tube temporarily damaged her vocal chords, and so her voice is different and did sound a little off, but she could kind of do it.  I'm going to practice some more with her tomorrow.  I was trying to get her to sing Opera, and Bob was working on rap.  She liked the rap better, although I don't even think that counts as singing-at all.
Uncle Paul went home.  He's always so positive with her.  He really should have been a motivational speaker-I think he missed his calling.  Anyway, he was good medicine!  It was great to spend time with him and we'll miss him.  We love and appreciate him so much.
Bob came back tonight and we were happy to see him.  It seems like he and I are a pretty good tag team.  Whenever I feel like I am tapped out on energy, he swoops in and saves the day.  He's such a great dad.
 Thanks so much for your letter, emails, texts, and visits.  You don't know how much that sustains us.  We feel so loved and hope you know how much we love all of you.  Keep praying for Hannah Rigby-she needs the comfort and strength that comes from everyone's prayers.

6 comments:

  1. I was wondering if singing some of her favorite songs might help her with the speech therapy. Certainly would have been entertaining listening to Bob rap! I used to drive my girls nuts because I put everything to music :). Glad the day ended on an up and hope today goes better as well. We're praying fervently for all of you and send our love.

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  2. Yeah!!! You really should record some of this for Americans funniest home videos! I love it!

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  3. What an awesome day! Such courage from that girly! The Savior is probably sitting by her side. So much to be grateful for! We love you all!! Hang in there, you little hamping, you! Definitely worth the fight, and the "doll-that-has-been-played-with-too-much" hair! Hehe!

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  4. When all this is said and done remind me never to play charades with the Hales. They have way too much practice. Love you Hannah, keep fighting.

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  5. Still praying for all of you! So happy to see that she is making good progress. I admire all the strength that you battle these trials with. You are all an inspiration to me.

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  6. We sure love you guys❤❤❤❤

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