Hannah's heart was pretty crazy all night but it has settled down a little bit today. They doubled up on her beta blocker to see if that will help. Right after they gave her the new meds, she went to physical therapy and got sick. It made her feel light headed and nauseated. Anyway, she looks better now. So many of her issues are from the side effects of her medications, but I don't know what you do. I guess you have to pick the lesser of two evils, and right now getting her heart back in rhythm trumps everything else.
In the night I was super frustrated with the doctor who was on call from Cardiology. So when the new guy on came in this morning I wasn't in a good place to talk diplomatically. Hannah could see I was getting mad and so she started yelling, "BE NICE! BE NICE! BE NICE! Another doctor said, "Your mom is always nice." and she said. "No, sometimes she's not." ha ha My true self has been revealed. Anyway, the new guy agreed with me 100% and promised to talk things over with the team. I'm trying to teach Hannah that you can disagree and still be nice but sometimes when I am sleep deprived and frustrated I need her to remind me. And she's very good at that. ha ha
So hopefully this medicine will work. It's really hard on her when her heart is out of sync-it's working double time and really wears her out. It's funny how every other time she's been here at Primary's it's been for her heart, and this time around we have worried about almost every other organ but her heart?! Maybe it has been feeling left out and just wanted some attention. ha ha I'll write tonight and let you know the update. Thanks for your prayers everyone!
Yes, we can disagree without being disagreeable. (But maybe not when it comes to the health and welfare of my children - all bets are off.). Sounds like the change in meds are helping and praying Hannah's heart gets back in sync.
ReplyDeleteMy heart breaks for what Hannah is going through. Jason dealt with crazy arrhythmias for a lot of years before transplant and it was exhausting! I can't believe how happy and optimistic you both are being in the face of all this. I need to be more like you!
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